EDS voices
Ehlers-Danlos syndrome (EDS) is a rare condition linked to a wide range of health problems which often affect patients every hour of the day. Use this app to document how EDS affects you and your environment without risk of overloading your social networks!
Ehlers-Danlos syndrome is often undiagnosed and the inability to recognise EDS problems in public health care may lead to periods of frustration for both diagnosed and non-diagnosed EDS patients. This app can also be used to channel some of this frustration and raise some awareness of the problems.
We want to explicitly emphasis that this is not a forum app on purpose, and that your voice cannot be commented or liked (unless many users request these features from within the app). Also note that voices with bad language may be removed without further notice by our moderators.
The app also contain quick links to important information found on the internet, such as printable emergency wallet cards and the possibility to email or SMS links with information to your friends or medical doctors.
Ehlers-Danlos syndrome is often undiagnosed and the inability to recognise EDS problems in public health care may lead to periods of frustration for both diagnosed and non-diagnosed EDS patients. This app can also be used to channel some of this frustration and raise some awareness of the problems.
We want to explicitly emphasis that this is not a forum app on purpose, and that your voice cannot be commented or liked (unless many users request these features from within the app). Also note that voices with bad language may be removed without further notice by our moderators.
The app also contain quick links to important information found on the internet, such as printable emergency wallet cards and the possibility to email or SMS links with information to your friends or medical doctors.
Category : Health & Fitness
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Reviews (4)
Jan. G.
Jun 5, 2020
Would of been a great little app but when I was clicking take to website it was loading spam, I don't care if I'm the 5 billion search I don't want a stupid prize which is not existant, I want support, not to be targeted by scammers
A. G. u.
Mar 31, 2017
Easy to use. Simple but great idea!
A. G. u.
Aug 7, 2018
Not enough to talk about when. You have to buy stuff to go in the community
Great idea, extremely poor execution. Sadly this is one of the worst apps I have ever encountered. It's a great idea and something very much needed for the EDS Community but whoever designed this app did not have the first clue how to execute a working app that has true functionality/ provides value to their target market/community. Most of the links to the web are either broken/outdated, the language is poor & it asks for money to post your "voice" in bold on a website link that is broken.